Maddyn's health..not sure what's going on

So a lot has happened in the last few weeks with Maddyn's health. I've been journaling it, and will copy my notes here.

For the last couple of weeks, we have noticed something has not been right with Maddyn. She drinks well over 100 ounces (we've been charting & she's usually b/t 110-130 oz) of water and milk a day. The average 15 month old drinks b/t 30-40 ounces a day. She pees twice as many diapers as the other kids in her class and is constantly leaking through her diapers, even overnights. She's losing weight and hungry. Her hands, feet, and lips turn purple frequently - This started as a once a week thing, then became a once a day thing, and now it happens every other hour. She has just been a different kid the last few weeks. Daycare has noticed, we've noticed.

So we went to our doc, who ran some tests. We got the first round of test results Friday afternoon. They proved that we need to have more detailed follow up tests. They are testing for juvenile diabetes, DKA (I still have very faint understanding of this) and other pancreatic types of things, kindneys, you name it.

Saturday morning, we went to the hospital and had hours of tests done.. poor thing was poked and prodded and it was just a long morning. Her poor arms are quite bruised, since they blew a few veins. Right now, we get to wait. We should get most of the results back starting Tuesday. Our doc has also suggested we meet with a pediatric endocrinologist.

So right now, we know nothing. It's just waiting and trying not to worry. I didn't want to post until we knew a little more, since it's entirely possible that it's nothing. However, the waiting is starting to stress me out.

When you think of all Maddyn has been through in the last 15 months, from cameras getting shoved down her nose to her intestines, getting stuck with needles and blood draws, xrays of all types, having masks attached to her face, and leads attached to her chest, monitors beeping every 15 minutes, and all other kinds of tests, it just really is overwhelming. She's been on meds since she was a few weeks old. Right when we thought she was over the DGE & GERD, it came back. I realize on a scale of 1-10 in the big scheme of things that can go wrong with a child, this is nothing. However, it's just hard to watch. I don't know how strong parents do it on a consistent basis. I am in awe.

So right now, we wait...and I will continue to keep everyone posted....Please keep Maddyn in your thoughts- hopefully this is nothing!

Easter

We hosted a few family members for Easter this year. I was able to get a few photos of Maddyn in her Easter dress. It was a gorgeous day, so we were able to bring out the bubble machine for the girls. As always, Rylee tried to steal the bubbles!!! Ry likes to catch the bubbles and chase them all over the yard- it's really funny!

Here are just a few photos- the rest are up on the Shutterfly site!

Jared & Amanda's bridal shower

Jared and Amanda had their first bridal shower, which mom and I hosted, on April 4th. We had it at the Hilton Lisle. Everything was perfect!! They decorated the room beautifully, the food was delicious, and Jared and Amanda received lots of gifts from everyone. It's hard to believe they will be married in just a few weeks!!!



Here are a few teasers, the rest are up on the Shutterfly site:

Wisconsin Dells...

Back at the end of March, we took a little mini-vacation to the Wisconsin Dells with Heather's BFFs and their families. It was an awesome weekend. We stayed at the Glacier Canyon Lodge, which is part of the Wilderness Territory. It was clean, huge, and so much fun! There are lots of indoor water parks up there so the little ones had a blast. Isaac is 8 months old (Megan and Andy's son) and just getting ready to crawl. Henry (Emily and Luke's son) is a year old and just starting to walk. The three of them just had fun :) As did the rest of us too!!! I'd highly recommend it!

I have to load all the photos onto Shutterfly, but here's a few teasers:

Updates galore on their way

I have lots of updates.... Amanda and Jared's shower, Easter, Doctor Appts, and lots of videos.
I will try to post them all in the next few days, so keep checking back.

Just a quick update from her 15 month appt:
Height: 33 inches
Weight: 25lbs 3 oz

I will be posting here and the shutterfly site until I'm caught up- so just stay tuned!! :)

Doggie Hugs

I was uploading photos and videos all weekend. I added some to the Shutterfly site, and have a bunch more to upload- will try this week. So check back in a day or two.

Here's a video to tide you over, too funny!! Maddyn loves giving Ry hugs--- they have so much fun!!

Busy Busy Busy

So sorry it's been so long since the last update. I'm hoping to give lots of updates over the next few weeks. We have so many fun things to catch up on.

Lots of get togethers with friends and family. I will try to upload photos to the Shutterfly account this weekend. We did visit the easter Bunny, and just like with Santa and the Bunny last year- she freaked out. It was hilarious!

Maddyn is talking up a storm. She repeats EVERYTHING you say (even words she shouldn't (hide)). We're probably well over 50 words now. She even said "Buh by mommy" to me on the phone this week when I was in CA. It was so cute. She turned 15 months on Wednesday and we have our 15 month check up tomorrow.

Other than that, it has been busy- I'm working like crazy so it's been tough to catch up. Will write more soon!