Pediatric Cardiologist

Yesterday we received a call from the Pediatric Cardiologist, saying they had a cancellation for today and could get us in way earlier than planned. We jumped on it!!
So today we went in and met with Dr P. He was very thorough, and really sat and listened to Maddyn's medical history (lord knows that took awhile to walk through). We explained the purple hands/feet/mouth and how drastic it all seemed. We also walked through the other symptoms she is experiencing. He was able to view her results from the previous tests as well.

He did an EKG on her today, and the first one came back abnormal. This was likely b/c we were having a problem with the leads, since Maddyn was hysterical. She obviously doesn't remember the months of living with the Apnea monitor on her (ha ha). So they ran another EKG and it came back normal. He suggested we might have another in a few weeks just to be safe, but overall he really felt that the problems she was experiencing were NOT due to a heart problem. He thinks that she might just have an immature circulatory system, or that this is being caused by something else- but not the heart.

That was good news for Dave and I to hear, considering the severity. We are very relieved. However, it didn't provide us with any conclusive answers-- it just crossed another thing off the list. Our next appointment is with the Pediatric Nephrologist. That's on the 26th.

The more I research this, the more I hope it's allergies. The Clarinex doesn't really appear to be helping fully though, so who knows. There's a reason I don't have an MD ;) I just hope that we continue to cross things off and get closer to some answers. I'll continue to keep you posted.

In the meantime, here is video Dave took of Maddyn this morning, playing in my shoes. It's cute, so thought I'd share!!