Jared's Married and Updates!

Well, what a week! Jared is now officially married. I've thrown tons and tons of photos up on the Shutterfly site. It was great seeing everyone last weekend! The wedding was insane!!! The day started out in the 90s and very humid. Storms on the way. They decided to move the wedding inside- and thank goodness!! About 15 min after the ceremony ended, terrible terrible storms plowed through! The power at the Hotel went out---AND never came back on!!

So the entire reception was in the 'dark'. Thank goodness for the DJ, who ran and got a gas-powered generator to keep the music going. The candle centerpieces lit the room, and although it was super duper hot- everything else went smoothly... until about 9:30. At 9:30 the hotel's emergency backup lights all went dark and they lost all backup power, which triggered the fire alarms. Next thing we know about 10 fire trucks show up. But, it turned into a great photo op :)

A few other glitches, but honestly it was a fantastic wedding that we are still laughing about! It will surely be memorable!

Maddyn did awesome as the flower girl. She walked by herself and even managed to dump some flowers!! What a cutie she was. Since I was in the wedding, I don't have many photos at all. I'm really hoping that the professionals grabbed some. We should see them in about a week. I'll be sure to share as soon as I can!

For Father's Day we headed up to 6 Flags Great America with some friends. It was Maddyn's first trip and she loved it. In fact, she rode the 'little kid rides' and was bored out of her mind. Once we got her on some 'exciting rides' she was in heaven!!! I put those photos up on the Shutterfly site too.

Lastly- a small medical update. We went to the Allergist last week and had a slew of tests done. She came back showing no allergies to anything they tested her for. That was a great sign. And, since the nephrologist appt we have really really been cutting her water back. We're down to about 70-80 ounces a day--- MUCH better than 120/130. Almost at the 64 we need to be at. Whew. And there have been quite a few days she'll even be at the 64. So we're wondering if she is growing out of this. In fact, the purple hands/feet/lips are happening much less. We charted only 11 times last week- a massive improvement.

We were able to get our pediatric neurologist appt moved up to Monday (From November) so that was a great sign too. We saw our doctor for our 18 month appt today and she feels that since Maddyn's signs are improving and that the cardiologist, nephrologist and allergist all felt that this is nothing to be greatly concerned over (assuming we get her liquid intake down), assuming the neurologist gives the all clear as well, she is just going to have us check back in 6 weeks again. She really feels that the purple deal is an immature circulatory system result and that is nothing to be concerned about. As for the excessive drinking- she said it could have been lots of things- just a 'comfort crutch', she might have caught a viral thing, it might have been weather or dryness/humidity related, etc. She told us to keep an eye on the total intake, get down to 64 ounces and just be mindful of it until August.

Maddyn's stats from today:
Height: 35 inches (Still off the charts)
Weight: 27lbs even-- 75th percentile

I'll be sure to post some wedding videos here- I have to clip them. I'll also post an update after the neurologist on Monday!!

Hope everyone is doing well!