Maddyn went back to the doctor today for another check-in. Her weight has remained stable this week, so that is a good sign. Even with 'cutting back' as much as we could on the liquids, she was still averaging 85 oz a day, and in the process we had a very miserable child on our hands.
Our doctor was able to get us into the Pediatric Nephrologist earlier, so we now go to see him on May 26th. He will review her test results and symptoms and see if there is anything that got missed or he'll run new tests. She is also having us meet with a Pediatric Cardiologist, so we can rule out any heart/circulatory issues with Maddyn's purple hands/mouth/feet. Lastly, she's going to have us meet with an allergist. She's starting to wonder if the excessive drinking might be caused by severe allergies. Maddyn has been experiencing a chronic cough for a length of time- and it's not proving to be viral or bacterial (from our understanding) and she has terrible eczema. Allergies and asthma run in the family, so she wants to have that checked as well. If after meeting with all three of those doctors, we still have no answers, we will go to the diagnostic committee at Children's.
We are just hoping that we get some answers soon. i will continue to keep you all posted. Thanks for the continued thoughts/prayers you've been sending Maddyn's way. For 16 months, she's sure been through a lot- she's a tough one. As a treat, we are going to Disney World for 8 days starting next Friday (May 1) to hopefully bring her some fun. She sure deserves it!
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