We received our first round of results from the doctor. The good news is that Maddyn passed all of the different glucose-related tests and it is not Diabetes!!!
The rest of the news is still so/so at this point. She ran an osmolarity test (?) and my understanding is that this tests the kidneys...she also ran other tests and those results are driving her to have us meet with a pediatric nephrologist instead of the endocrinologist. She said she wants this specialized doctor to review the results and meet with us. I asked for more details, but she really said at this point that there were some inconclusive findings that she felt the specialist should review.
She also said that we have a 2nd option based on how it goes with Dr K (the Ped Nephrologist) to go to the Children's Memorial Diagnostic Group and have them look over Maddyn's various symptoms and results. This group of doctors encompasses peds from many fields who work together to try to understand what is going on, based on the symptoms and test results. This seems like a last resort option, so she wanted us to try to meet with Dr K first.
So I hung up and called Dr K's office and can't get in until Aug 25th. I will call our doc back tomorrow morning and see what she wants to do- There doesn't appear to be too many Pediatric Nephrologists in the area covered by our insurance. I don't know how I can mentally wait that long.
In the meantime, we are continuing to chart Maddyn's symptoms: how many ounces she drinks, wet diapers and purple hands/feet/mouth symptoms and we go back into our doc next Friday for another weight check and follow-up.
Maybe we all are making a bigger deal of this than we should. I dunno. I just want answers, so they can say “here’s what is wrong/nothing is wrong”, and we can provide Maddyn with what she needs and move on.
I will let everyone know if we learn anything new tomorrow or next Friday. Thank you again for all of the support!
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